Monday, September 12, 2011


I have got to keep this more up-to-date! Lord knows I have enough to say LOL!

Since Elly was diagnosed 3 years ago, the biggest fear I have had with her (and Anne for that matter) was school. I was petrified of how we were going to handle that and keep her safe. I had a little bit of practice last year when we placed her in pre-K at Kindercare. That turned out to be the best experience, for Elly and for me. Kindercare cared for Elly better than I ever would have imagined. Last September we placed Elly into Kindercare for 2 mornings a week. We had Animas come out and do a training on how to work her pump and ADA came to give the staff glucagon training. The only thing Kindercare won't do is bolus for high blood sugar (and due to being a private school, they can do this). With Elly being on a pump, they would bolus for food, where if she was still MDI, they would not and I would have to go in and do that. Also, with Elly having celiac, I had to provide all of her food rather than her eating what is made there. This, in some ways, made it easier because i would write the carb counts on all of the food and then they would bolus after she ate. They kept me informed of anything that happened with her blood sugar and called with any questions of concerns that they had. Over the summer, we went to 3 half days a week, mostly to get Elly prepared to start going 5 half days a week in Kindergarten.

At the end of the school year, Kindercare had a graduation for all of the pre-K kiddos. It was the cutest thing ever! The kids wore little mortarboards and were given a diploma and a balloon. Way too cute!!

Anne at Elly's graduation.

All the kiddos coming outside for graduation.

Elly is getting her diploma from the center director.

Elly getting her balloon, which is the biggest reason she wanted to go! And I am NOT kidding!!!

With her diploma and balloon!

My little graduate!

As we got closer and closer to September, I started to get more and more nervous. Kindercare had treated us so well, that I was hoping the public schools would do the same. In April I had called and talked with the school nurse who assured me that Elly, as is all of her diabetic kids, take 1st priority and that we need to get a 504 in place before school starts. About a week before school starting, I met with the nurse and then a few days later, we held a 504 meeting so everything Elly would need would be on paper and legal. Our nurse assured me that she would be at our school for at least the first few days while Elly was there to make sure that everyone that needed to be training in working with her was trained correctly (our nurse in in charge of 7 other schools in the district).

I am happy to report that so far, everything has been going smoothly and I am so pleased with how our school is working with Elly. Our nurse is fabulous and I couldn't ask for a better nurse or a better office staff, who is the main caretakers for Elly when the nurse isn't around. Elly is happy and loves school. She is in afternoon kindergarten, which I requested because I wanted to know where her blood sugars were trending before sending her off, and that has been wonderful. Her teacher (a man!!!) is great and Elly loves him. Our school has a very strict dress code (uniform actually) and that has actually made it easier for me to dress Elly. She has to wear navy pants/skirt/shorts/jumper and then can have a white or navy collared shirt. She has to wear tied athletic shoes as well. I had a navy pump pouch made for her which I love love love!!! It hugs her body beautifully and easily hides under her shirts, as she is beginning to become a little more self-conscious about it. I make sure her CGM sensor is places fairly high up on her arm so most of it can be hidden under her sleeves as well.

For a while I won't be venturing far from the school, just in case...but I have great faith that they will do what is needed and Elly is in the best hands possible when I can't have her with me. I couldn't ask for a better situation and thank my lucky stars that she is where she is.

Monday, May 16, 2011

Happy Birthday Elly!

My "little" girl Elly turns 5 on the 18th, and this weekend we had a birthday party for her. I just can't believe that she is going to be 5. I remember the day she was born like yesterday! And next week we will go to Kindergarten Round-up to get her registered for the fall. Ahhhhh!!!!

It was such a fun day and Elly had a great time. She actually appeared kind of overwhelmed most of the time.

She got a lot of really nice things and even was able to have a friend from school come to her party.

The cake was my pride and joy! Since Elly has celiac (as well as being VERY picky!) the option of buying her cake wasn't an option. I wanted to try and make her a cake that didn't totally look homemade, but I also have no training in cake decorating. Elly kept talking about wanting an "Ariel that she could eat" on the cake, and I was able to find a website that sold sugar screens that can be placed on a cake. Elly loved the "baby princesses" one so that is the one that I got. Then, the day before the party, I had to get to work on making her cake. I decided to make a rainbow cake, which means that when you cut into it, the inside is a rainbow of colors. It was super easy to do, but very time consuming as well. But, in the end, everyone loved it and it was TOTALLY worth the time and effort it took to make the cake.

I did find out later that Anne must have REALLY liked the cake, because after finishing her own piece, she was going from plate to plate, finishing other peoples left overs! Little turkey! Needless to day, her blood sugar didn't do well, and it took me most of the night to get her back into range.

For Elly, "D" actually played nice and didn't play too much of a role in the festivities. I was so glad for that and Elly was able to be as much of a kid as she wanted at her own party. Elly got to be a princess and have her own fairytale day, and for that, I am grateful.

Happy birthday to my beautiful girl!

Saturday, May 7, 2011

Happy Mother's Day!

To all the mother's out there, I hope you have a wonderful mother's day. To my fellow "D" moms, I hope you have a spectacular day. To be a "D" mom is such an extraordinary position, and it is a place that I don't wish on anyone. Every mom worries about their child, but a D mom's worries are beyond comprehension for most "regular" moms. For a D mom, just putting our child to bed at night is terrifying, as we fear that they may not wake up in the morning. I am constantly causing my girls to bleed so I can make sure their blood sugars are OK. I am constantly causing them pain to change infusion and sensor sites. I am constantly scrutinizing everything they eat and counting every carb so I can dose their insulin accordingly. I am constantly sleep-deprived, as I am checking their blood sugars and making sure they are breathing all night long. I do this because I love my girls more than life itself and can't bear to think about my life without them.

I read this on another blog and felt that it was especially pertinent today.This is my life and the life of most other D moms around the world.

A Mother's Promise by Gary Hempleman

She walks down the hallway in silence so deep,
Keep watch over him, as her little one sleeps.
With meter in hand, she opens his door,
Making sure not to wake him as she crosses the floor,
She sits on his bedside and brushes his hair,
As he dreams of shooting baskets, without a "D" care.
She holds his hand softly; his fingers so small,
As she watches and wonders why "D" came to call.
While she watches him sleeping, so peaceful and warm,
The forces inside him fight a constant "D" storm.
Will he ever be free of shots and blood testing?
She sits and she wonders as she watches him resting.
The beep of the meter breaks the silence of the night;
A small drop of blood tells if everything's right.
The seconds count down to the final display,
I hate this damn meter; i want to throw it away.
The number is fine, one down, a lifetime to go,
As he turns in his sleep, will he ever know?
Why does this "D" happen to someone so small?
My son is my hero, but my baby most of all.
She turns at his doorway, looking back one more time,
It's a nightly routine of the very worst kind.
She walks down the hallway and time passes by,
As she sits in dark silence and quietly cries.
I have to stay strong, and for him i will fight,
We'll battle this "D" with all of our might.
I'll teach him to master and conquer this foe,
This "D" will not stop him, I promised him so.
Gary 2001

Happy Mother's Day everyone!!!